On Saturday, May 21, 2011, the Smith-Magenis Syndrome (SMS) Research Foundation, a 501(c)(3) organization, will host the Second Annual Sienna’s Steps 5K Run/Walk at Memorial Hospital Miramar.
Sienna Rose, daughter of Missy and Dan Longman, was born on May 21, 2006. After undergoing open-heart surgery at just four weeks old, she was diagnosed with a rare and chromosomal disorder called Smith-Magenis Syndrome (SMS). Since then, Sienna has undergone eight more surgeries for various medical complications associated with the syndrome. She maintains a daily routine of intensive physical, occupational and speech therapies. Sienna’s parents, along with Jennifer and Chris Iannuzzi, whose daughter was also diagnosed with SMS, founded The SMS Research Foundation in June 2010. The Foundation’s mission is to improve the knowledge and understanding of SMS so that viable therapeutic options can be developed to improve the quality of life for those diagnosed with SMS.
Calling All Fitness Enthusiasts! Smith-Magenis Syndrome (Sms) Research Foundation Hosts The 2nd Annual Sienna’s Steps 5k Run/Walk
On Saturday, May 21, 2011, the Smith-Magenis Syndrome (SMS) Research Foundation, a 501(c)(3) organization, will host the Second Annual Sienna’s Steps 5K Run/Walk at Memorial Hospital Miramar located at 1901 Southwest 172nd Avenue in Miramar.
The 5K run/walk course is USATF certified and will be officially timed by Split Second Timing. Awards will be presented to winners in each age division for both male and female. The event, sponsored by Memorial Hospital Miramar, will be Emcee’d by EO Entertainment and include breakfast for all participants immediately following the race. Each pre-registered participant will receive a t-shirt and goodie bag. Race fees are $25.00 for pre-registered participants and $30.00 for race day registration. To register for the 5K Run/Walk please visit www.siennasteps.com or www.SMSResearchFoundation.org.
Participants can also set up an individual fundraising page for the 5K Run/Walk by clicking on “Become a Fundraiser†during the registration process. The person who raises the most money will be awarded with a suite for the Alegria Cirque du Soleil performance at the BankAtlantic Center which includes 24 tickets and underground VIP parking. For any questions, please call Missy Longman at 305.525.9678. Participants are encouraged to pre-register. Pre-registered participants can pick up their packets on May 20th at Runner’s Depot located in the Promenade Plaza at 2233 South University Drive, Davie, FL 33324. Participants can also pick up their packets at the race location the morning of the event. Same day registration begins at 6:30 am and will conclude at 7:15 am. The race will begin promptly at 7:30 am.
Sienna Rose, daughter of Missy and Dan Longman, was born on May 21, 2006. After undergoing open-heart surgery at just four weeks old, she was diagnosed with a rare and chromosomal disorder called Smith-Magenis Syndrome (SMS). Since then, Sienna has undergone eight more surgeries for various medical complications associated with the syndrome. She maintains a daily routine of intensive physical, occupational and speech therapies. Sienna’s parents, along with Jennifer and Chris Iannuzzi, whose daughter was also diagnosed with SMS, founded The SMS Research Foundation in June 2010. The Foundation’s mission is to improve the knowledge and understanding of SMS so that viable therapeutic options can be developed to improve the quality of life for those diagnosed with SMS. The SMS Research Foundation will award their first grant of $50,000 on May 1, 2011.
Smith-Magenis syndrome (SMS) is a chromosomal disorder characterized by a recognizable pattern of physical, behavioral, and development features. It is caused by a missing piece of genetic material from chromosome 17. It is estimated that SMS occurs in 1 out of 25,000 births. SMS is under-diagnosed, but as awareness increases, the number of people identified grows every year. To learn more about the SMS Research Foundation, please visit www.SMSResearchFoundation.org.
